tag:blogger.com,1999:blog-717212172784856160.post143351057670119087..comments2024-03-14T09:09:54.050-07:00Comments on The Migraine Life: My experience with Topiramatepipdig Installationhttp://www.blogger.com/profile/16499116061072668123noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-717212172784856160.post-33406961501847834692020-03-06T11:01:14.822-08:002020-03-06T11:01:14.822-08:00I had exactly the same experience + a really reall...I had exactly the same experience + a really really deep depression and a lot of anxiety. So much that I was even thinking of ending my life. Awful! But...the migraine almost disappeared! It was miraculous! But I couldn’t stand it for more than 6 months. I couldn’t live like that. In the end, even though I didn’t have migraine and I have dreamt of being migraine free for the last 20 years, being on Topimax was the worst thing I have ever experienced!MaríaJhttps://www.blogger.com/profile/03878449254708379770noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-68062837761151722062018-05-03T02:31:40.782-07:002018-05-03T02:31:40.782-07:00My hair came back wavy :) What a nice surprise tha...My hair came back wavy :) What a nice surprise that was!newly wedhttps://www.blogger.com/profile/06098027489666503104noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-38014592438871742622018-03-12T12:14:58.982-07:002018-03-12T12:14:58.982-07:00No not so far sadly.. but I live in hope! Trying t...No not so far sadly.. but I live in hope! Trying to make dietary and lifestyle changes even more so now .. takes all the fun out of life sometimes though xGtturb0https://www.blogger.com/profile/14767779464594126878noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-60705107759052591822018-03-12T09:33:19.567-07:002018-03-12T09:33:19.567-07:00Always best to discuss with neuro.. you never know...Always best to discuss with neuro.. you never know what they might suggest or offer. Is the topiramate helping the head at least at the moment or is it just giving you horrible side effects? Good Luck! The Migraine Lifehttps://www.blogger.com/profile/07096255951610874261noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-73994741262192294652018-03-12T09:31:44.232-07:002018-03-12T09:31:44.232-07:00So pleased you have found some relief! I was actua...So pleased you have found some relief! I was actually put on Candersartan whilst on topiramate and have continued to take it since coming off. Don't think it does a lot for me but luckily not too bad on the side effects. Lots of success stories on insta post for topiramate which is always nice to hear :)The Migraine Lifehttps://www.blogger.com/profile/07096255951610874261noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-86501543157050471662018-03-12T09:29:24.225-07:002018-03-12T09:29:24.225-07:00Sorry to hear you had a rough time on Topiramate t...Sorry to hear you had a rough time on Topiramate too. Have you found a preventative that does seem to help?The Migraine Lifehttps://www.blogger.com/profile/07096255951610874261noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-79942087974531193342018-03-09T14:45:03.165-08:002018-03-09T14:45:03.165-08:00Wow! Thank you! I feel like this is exactly what I...Wow! Thank you! I feel like this is exactly what I needed to read.<br />I have been taking topiramate on and off for about 5 years now! (Crazy I know)<br />But when I first started it, it worked, the pins and needles only lasted a fews and the weight loss didnt bother me so much because I was young and being stick thin was 'in'. Throw a pregnancy and some other issues in made me stop taking it for extended periods, fast forward to now, I am on the 100mg dose as my migraine frequency was at an all time high, and I am now a zombie, I am so unbelievably exhausted all the time, the brain fog is real, I feel like half my vocabulary leaked out my ears while I was sleeping.. And the driving thing! Its scary! I'm only disappointed I havent lost any weight yet haha..<br />But seriously, I've been contemplating going back to see a neuro for the last 2 weeks.. But I kept thinking "it will settle down" "things will change"<br />But after reading there are other experiences just the same, I think I will make the appointment. Thank you!Anonymoushttps://www.blogger.com/profile/17848085451297226097noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-48015143423942750552018-03-09T11:16:31.201-08:002018-03-09T11:16:31.201-08:00I completely agree, I had brain fog, couldn’t reca...I completely agree, I had brain fog, couldn’t recall words, pins and needles, a face twitch, lost a stone and looked ill, had no appetite and couldn’t even finish a meal! I found my job difficult and would often be left embarrassed that I couldn’t recall words. I was on topiramate on and off for 5 years. I was offered no other alternative preventative medicine during this time so felt when my migraines deteriorated that this was my only option. I have currently found some relief from candesartan and 3 monthly nerve blocks which have reduced the number I have. It’s definitely been a trial and error for me but I’m sure there is success stories out there for topiramate too! SaraKatehttps://www.blogger.com/profile/16286809182646194473noreply@blogger.comtag:blogger.com,1999:blog-717212172784856160.post-13182242670781535382018-03-09T10:36:43.635-08:002018-03-09T10:36:43.635-08:00I had exactly the same.. I think I had all the sid...I had exactly the same.. I think I had all the side effects listed at one point.<br />Lost weight, brain fog like never before didn’t feel like I was here. Flashing lights across my eyes daily and also every day id have a weird episode like I was going to have an attack but didn’t. Insomnia was the worst.. never ever suffered that before and when it’s chemical there’s simply nothing you can do about it. I was exhausted.. didn’t eat.. all food went right through me. Couldn’t remember things, or think properly either. Pins and needles in my hands and heels. I had to withdraw from them and then I went back to normal. I didn’t feel like they were helping with prevention. I still had attacks, and just didn’t want to put myself through it anymore.Gtturb0https://www.blogger.com/profile/14767779464594126878noreply@blogger.com